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CPR
The Computer-based Patient Record was the term used in the report of the Institute of Medicine. The report recommended that an Institute be formed to promote and develop standards for the CPR. This Institute, the Computer-based Patient Record Institute (CPRI) played during its 10-year existence a major role in promoting the vision during its 10-year existence.
"The electronic health record is a computer-stored collection of health information about one person linked by a person identifier."i This statement encompasses the fundamental vision of the computer-based patient record. The vision for the CPR encompasses a mainly virtual computer-based medical record that includes all information (clinical and administrative) and covers all practitioners ever involved in a person\'s health care, independent of medical specialties. Therefore, it includes linked bits and pieces of a person\'s health history from the dentist to the psychiatrist. It also is longitudinal, ideally including prenatal and postmortem information. The CPR vision also had an important feature as it foresaw the CPR as a basis for and an integral part of decision support. In other words, it distinguished the CPR from the paper-based medical record, which was a passive recording tool.
Objections
The vision of a longitudinal health record has become controversial in regard to confidentiality. The notion that the computer-based patient record should include everything from pre-natal to post-mortem information has been rebuffed by privacy advocates. When I testified to a Senate committee in 1996, I was told by a very famous politician, "I am 64 years old. I do not want my physician to know whether I had a mental breakdown at 16, or an abortion at 19. It does not affect my care now and I resent any plans for a lifelong health record." Privacy advocates have argued that in the majority of cases, the medical record should only contain information that is relevant to care regarding a specific encounter. Of course, in cases of chronic illness, there may be exceptions. The discussion of what is relevant has not come to any conclusion. Researchers, of course, would like to work with all information of lifetime records. Practitioners have mixed responses ("too much irrelevant information","would never look at it", "might be useful"), but privacy advocates have been rejecting the idea, except when there is a special medical reason to link such information.
The vision of an interoperable patient record that is provider independent is unrealistic. There is neither incentive, nor technical possibility in the foreseeable future, for a medical record that is interoperable between unlimited provider entities.
There was no benefits justification. The CPR was to bring better care and/or make the system more efficient. The latter has not been demonstrated yet. It is widely accepted that using the computer means slower data entry for the practitioner. Why should providers spend money for such systems? Outside of a few medical centers, where installations were driven by individuals, the CPR never got into the mainstream of healthcare provider implementations.
Practitioners could not be convinced to use computers in the exam room when there were difficulties in justifying costs, essential training resources, and necessary system changes. This should not be mistaken for some of the products labeled “CPR Systems.” Many systems do not comply with the criteria for a CPR and are just good marketing.
Many vendors identified their products as CPR systems, although none satisfied the requirements for a longitudinal, completely paperless, interoperable, multi-
provider-, and multi-discipline-based computer-based medical record. The benefits of CPR systems were generally accepted to be "better quality of care" and "higher efficiency."
In summary, the CPR vision is diminished by the following issues:
• Privacy issues resulting from the vision of a lifetime record that will follow the patient
• Unrealistic expectations for interoperability
• Lack of benefits and incentives
By 1995 most people recognized the discrepancy between the vision and the reality. Standards, workflow, and user habits, as well as technologies weren\'t ready for the grand vision originally put forward. Most of all, the business case for CPRs was difficult to achieve. Hopes for many of the hyped new technologies, such as speech recognition and community health information networks, fizzled while traditional information systems grew enormously. Transcription, for example grew during the last decade to an estimated $15- billion to $20 billion industry, involving 300,000 to 400,000 medical transcriptionists.
The term CPR continues to be used by many of the individuals involved in the CPRI as well as in circles of the American Medical Informatics Association and their international affiliates. |
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